• Katooshie
    782
    Going for a CT lung scan this morning. Not sure what the protocol is, so I am not wearing a wig...for the first time in a couple of weeks. I feel awful to have to go out in public without my faux hair.
  • DeniseJH
    117
    Well that sucks all the way around! Hope all is well, and over quickly !!
  • Shar W
    789
    I hope it goes well. I went to the dentist last week with my bio hair. Then I didn’t have to worry about it shifting or if they were staring at my hairline.
  • Moonlitnight
    1.7k
    I hope all goes well for you, both lung and hairwise.
  • Sunset
    460
    When I go to the dentist I wear my topper. Nice ones look so real on top I don't think they probably can tell.
  • Sunset
    460
    I hope it goes well, Kat. (((hugs)))
  • dc21
    308
    I have had an abdominal CT scan wearing a wig. It doesn't interfere. With an MRI, it is only metal that is magnetic that you can't wear.
  • Vee1028
    1k
    you will probably be asked to remove any metal objects so maybe best to go without the wig. I hope your lungs look as beautiful as the rest of you does!
  • Katooshie
    782
    Thanks friends. Scan is done. I wore my non metallic style a do hairpiece. July 25 i get results
  • Moonlitnight
    1.7k
    Good stuff Kat. Fingers crossed. Hugs!
  • Sunset
    460
    I'm saying prayers for you now you hear good news. :pray:
  • Crystal
    214
    praying for good results :pray:
  • Misty
    349
    Good luck Katooshie. Sending prayers for a great result for you. :hearts:
    I have worn my JR Zara for both a CT and MRI as well as surgery. All good as long as no metal pieces.
  • PinkEvie
    260
    hoping for good news on the 25th for you. xx :up:
  • animallover
    237
    Good luck and praying for good news!
  • alicexm
    70
    I have a couple of JR boho caps for just such occasions. Add a scrunchie at the back and I’m good to go. Kat, hope all goes well.
  • Shar W
    789
    Geez, that's a long time to wait. :worry:
  • Sunset
    460
    I hate waiting for test to come back. I've had to wait two to three weeks before.
  • Katooshie
    782
    I think i found a drug to fix my auto immune disorder...and they use it for hair growth too! Cool! Low Dose Naltrexone!
  • Moonlitnight
    1.7k
    My :heart: was on that! (For a different reason of course.) Woo! I wasn't aware that it grows hair. I know it is an opioid antagonist. I hope it solves the auto-immune issues, and soon. xo
  • Moonlitnight
    1.7k
    Ooh! It also increases libido.
  • Shar W
    789
    I have 3 autoimmune diseases. :sad:
  • Cathe Lartigue
    285
    Keeping my fingers crossed that the results are good!!!
  • Katooshie
    782
    Seeing doc today at 5. I am sure this is the solution I've prayed and searched for 9 years!!
  • Katooshie
    782
    look into low dose naltreone. Which 3 do you have? I've got uveitis in eyes and sarcoidosis affecting lungs and skin
  • Shar W
    789
    I have Sjogrens, Hashimotos Thyroiditis and they are now saying Fibromyalgia maybe autoimmune.
  • Shar W
    789
    Bummer. Autoimmune sucks big time.
  • buckeyegal1963
    580
    Yes autoimmune conditions do suck, I have crps (complex regional pain syndrome) in my left leg as well as Fibromyalgia, or so they told me. I was sent on the doctor-go-round, prescribed different meds, tests etc. until I just go sick of it and started down the holistic path. I haven't found anything to get rid of it, but I can't tolerate the pharmaceuticals they prescribed, they made me feel awful, so after a few days I stopped taking them.
  • BeautyWithin
    295
    Praying for you! I had to do the same a while back. Thankfully good results. The tech was very respectful of me having to take off my wig. I hope the same for your experience.
  • Katooshie
    782
    low dose naltrexone is VERY successful for your auto immune illnesses!! Want a documentary about it?
  • Shar W
    789
    Yes please. Right now I am using Restasis for my dry eyes because of the Sjogrens. I am taking Levothyroxine for my Thyroid and Cymbalta for the Fibro. But I am always tired. I am not sure where that is coming from, it could be from any of the 3.
  • Katooshie
    782
    Documentary about the doctor/researcher who figured out low dose naltrexone works for auto immune. He wprked with drug addicts who developed hiv/aids from infected needles. He discovered naltrexone in low daily doses xa halt and even reverse auto immune disorders...

    https://youtu.be/x54Jccr8GT8
  • Shar W
    789
    Thank you. I will watch it. Unfortunately I have to find another new Rheumatologist. But I am always open to trying new things.
  • buckeyegal1963
    580
    I was prescribed Cymbalta along with Lyrica, I only took them for 3 days. Maybe the dose was too high, as my doc suggested when I went back, but they made me feel like a crazy person. It was weird, I almost felt like I was outside my body, I was agitated and anxious, third day I also felt angry, I didn't feel like I was *me*, so I took myself off them.
  • Shar W
    789
    That sounds terrible. It is working great for me. No side effects. I did try a few others and I got Serotonin Syndrome from them and ended up in the hospital. Scary stuff.
  • buckeyegal1963
    580
    You would think doc's would check stuff like that before prescribing you additional meds! Something similar happened to my mother, she had copd and was on several medications, albuterol was making her shake, her cardio prescribed her Inderal to treat her treat tremors....Inderal is not supposed to be given to patients with copd, she ended up in the hospital for a week! After that incident I made her tell me every prescription she was given so I could check if there were any interactions or contraindictions, because her doctor certainly didn't!
  • Shar W
    789
    It was prescribed correctly, I just had a reaction to it. But I agree, you need to be careful. Your poor mom, that's scary.
  • Katooshie
    782
    Got prescription for low dose naltrexone! Starting tomorrow. Excited!!
  • BeatA
    658
    @buckeyegal1963 seems
    Like
    Starting both those medications at once is what pushed you over the edge. Both are commonly used in pain management particularly for nerve pain and crps, which is notoriously hard to treat. Have you tried regional blocks? Acupuncture? I’m
    Sorry I know this is really bad pain and people
    Who don’t know about crps will probably think you are crazy, but you’re not! Well not because of that anyway. You may still be crazy because you pick out skunk wigs for your wig sistas, but that’s not Necessarily related.
  • buckeyegal1963
    580
    I don't think anyone thought I was crazy, not even the doctors, lol. There was something obviously wrong with my leg. I slipped on ice and fell one day, I was a little sore but no big deal, a couple of days later I woke up and my leg was swollen from the knee down, ice cold, purplish in color and I could barely put any weight on it. I went immediately to the ER, they were concerned that it could be a blocked artery, which it didn't turn out to be, they also did x-rays, nothing was broken. I was referred to a ortho, he ordered a mri, physical therapy and prescribed me celebrex (did nothing to help with the pain). The mri showed nothing structurally wrong with my leg, the ortho said he was stumped that I was presenting atypically, that there was something obviously wrong with my leg (still swollen, cold to the touch and purplish), I was then referred to a vascular specialist, had ultrasound and arteriogram done, again nothing presenting on those tests. I wish something had, that a surgery could fix me. Next I was referred to a neurologist, he's the one who gave me this diagnosis and suggested pain management as there is no *cure* for crps. I never went to the pain management center, at this point I was tired of all the doctors and tests and didn't want to be on any meds. Physical therapy helped more than anything (and that was not fun either) to regain mobility. I had to use crutches, than a cane for months before I was able to walk normally. I've also been to a chiro, didn't help either. I haven't tried acupuncture, I've also just heard about dry needling I'm going to look into. I have a TENS unit that provides a little temporary relief.

    This is already too long, so I won't go into the fibro story that started me on the merry go round of doctors again, lol. The doc that prescribed me the Cymbalta/Lyrica combo said I'm one of those people who are sensitive to side effects, that he would cut my dosage in half, but at that point I wanted nothing to do with those or any other meds, I felt so awful on them.
  • BeatA
    658
    wow so sorry.
    Some people have CROS and not much outward signs you can see except the persistent pain I thought you might have been one of those, but yours manifested with visible sign so nobody thought you were nuts. I wished you had gone to pain management center. They taught us in residency that the sooner this gets treated the better the chances for success. But I never went into pain management. I did lateron get some acupuncture training ( just cause I wanted to) and that where I found out that it is used for crps as well. I don’t really do much acupuncture anymore ( only friends and family for this and that), but if you can find someone good it may be quite helpful. And a lot of insurance carriers pay for it too, especially when a pain center does it.
    Sorry I am being lengthy as well, but it is a very low
    Risk thing to try. No drugs.
  • VocalEyes
    219
    I’m sending love and positive energy to you. Waiting for results is terrifying.
  • Katooshie
    782
    it doesn't scare me at all. God has not given me the spirit of fear...but of power...love...and a sound peaceful mind :)
  • VocalEyes
    219
    You are truly inspirational!
  • Sunset
    460
    right on. Praise the lord. :pray: :love:
  • Alex Kautz
    840
    and a sound peaceful mind :)Katooshie

    Love that :)
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