I have been following this post and find it comforting and so supportive. Haven't been able to write until tonight though. I am so happy that it is helping you. The people on here are amazing. I don't know of any support groups. I have looked at heralopecia.com
over the years but sometimes it made me more depressed. Cornerofhopeandmane.com
can be uplifting. They are forums though, not really just support groups.
I, like so many, have lost so much precious time lamenting over my hair loss. About 25 years ago I noticed that an older sibling was losing hair. Not my mom or dad though. Even though I wasn't losing hair at the time, I freaked. My doctor at the time said to try Rogaine. I did but wasn't fully aware that it would be a lifetime commitment. Over the years I developed Hashimoto's which is really what started my hair loss. Than a sudden violent loss threw me into not only sudden shock but also the deepest depression of my life. I developed telegen effusium from the shock and stress. Than the telegen effusium turned into chronic telegen effusium. Two doctors said it probably wouldn't get better. For many years as I was trying to cope with loss of life I didn't care much about my hair but once I realized that I had no choice but to go on living I knew I had to do something to make me feel normal again. I was still using rogaine and started adding lots of hair supplements. I spent so much time crying about hair loss, laying in bed not wanting to get out, sitting on the bathroom counter with a mirror in my hand and one at my back, searching my whole head for loss, needing to see it but not wanting to. That sick feeling in the pit of my stomach. I literally hung my head in shame whenever I would go to the store. So much time wasted, so much sadness, sadness takes energy. I asked myself why my hair mattered when I was attempting to survive the loss of someone I loved more than anything. But the thing is I had no choice in living and being a balding woman in this society is not an easy task. My hair last June was shoulder length and I hated watching it fall out and I really dreaded washing it and combing out handfuls of hair. I started wearing hair in July. I also stopped the rogaine and all supplements. But for me, I still dreaded looking at my pathetic stringy shoulder length hair and it still made me sick to my stomach. And I still hated washing it and all the loss in the shower, etc.... so I buzzed it. That for me was the most freeing moment. I loved the feel of it. I loved taking a shower again and washing my fuzzy head. No more watching my stringy hair fall out. Putting on a wig felt better too. I now hold my head up and smile. I love my wigs. I love my buzzed head. I love this forum. Thank you
BTW......I do also love taking off the wig after being out the public life because there are times I do feel like a fake, not as much as when I first started wearing hair but that feeling still wants to invade my emotions and wreck havoc more than I want it to. I have never been a make up wearer, still am not, so wearing hair at first was extra stressful for me. It does get better but I wonder will that fake feeling ever go away? I pray it does. I don't wear hair when I am home so I can go days without wearing one and I get used to my buzz cut and love it. Than I put on my wig and it looks fake because of so much more hair. Than I get used to all that hair and when I take if off , I have to get used to the buzz again......and on and on. It does play with the emotions. It is like I have two me's! I wish you the best in your journey and hope you find some relief in your grief, it takes time but it will come if you let it.....grief takes it time and we can only try to be gentle with ourselves.